Grand Pier Supports Campaign To Help Children Suffering Genetic Disorders
Staff at Weston-super-Mare’s Grand Pier left their uniforms at home to pledge their support for Jeans for Genes Day.
The seaside attraction offered its full support to the nationwide event by asking all employees to wear jeans in return for a small donation on Friday, September 18.
All money raised will go to Genetic Disorders UK, the charity that aims to transform the lives of children with genetic disorders.
The charity funds a range of initiatives that improve the quality of life of children and families affected by such disorders.
Jeans for Genes Day will help raise further funds to launch much needed support services and increase the number of grants the charity provides to disorder-specific charities.
Paul Charalambous, General Manager of the Grand Pier, said: “It is estimated that one in 25 children are affected by a genetic disorder.
“This means that in the UK, 30,000 babies and children are newly diagnosed each year and more than half a million children and adults are living with a genetic disorder.
“By pulling on a pair of jeans and doing something extraordinary in denim at work, we have helped to fund the vital care and support services that transform the lives of many children.”
While individual genetic disorders are rare, it is thought that there are currently more than 6,000 diagnosed disorders and new disorders are being identified every day.
Genetic Disorders UK aims to be the leading source of information and support for both those affected by a genetic disorder, and the charities and patient groups that support them.
